Tagged "Down Syndrome therapy"


Ask A Therapist: Down Syndrome & Teeth Grinding

Posted by Deborah Grauzam on

Hello, 

 

I have a 23 months old baby boy with Down Syndrome, who is grinding his teeth so bad lately. It is so annoying sometimes. He has 9 teeth and feeding is doing much better at this time. We have the Parent Kit and we are using the Straw #1. My husband is thinking to take him to a pediatric dentist, but I believe I can find an answer from the TalkTools experts. Please help us, we are desperately.

 

 

Thank you,

 

Lucy

 

Hi Lucy,

What you are mentioning is a common concern I hear from parents of children with Down Syndrome.  You are right to follow your instincts. Often we see children grind their teeth as a sign of jaw weakness and a need for sensory input. When I see patients who are often grinding their teeth we work on chewing on the chewy tubes frequently throughout the day. This will help with jaw strengthening and providing sensory input.  If you would like more information about how to do this and why, there are two video that you might find helpful: "A Three Part Treatment Plan for Oral Placement Therapy" and "Developing Oral Sensory Motor Skills to Support Feeding in the Down Syndrome Population.". Please let me know if you have anymore questions. 

We are always happy to help.

Thanks,

Liz

 

Elizabeth Smithson, MSP, CCC-SLP is a Speech-Language Pathologist who has over 10 years of professional experience working with infants, children, adolescents and adults. She earned her Master of Speech Pathology at the University of South Carolina. Liz is also a Level 5 TalkTools® Trained Therapist. She has received specialized training in Oral Placement Therapy, Speech, Feeding, Apraxia, Sensory Processing Disorders, and PROMPT©. Liz works with clients with a wide range of disabilities including Cerebral Palsy, Down Syndrome, and Spinal Muscular Atrophy. She works through her own private practice Elizabeth Smithson Therapy, LLC in the home setting and in the TalkTools® office in Charleston, SC.

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Ask A Therapist: A good start for a child with Down Syndrome

Posted by Deborah Grauzam on

Hi there, my daughter is 2.5 years old, she has Down syndrome. We live in New Zealand. Can you please let me know what you would recommend for her? She is making sounds and attempting to say a few words. She uses sign language - and has approx 30 signs. Her tongue protrudes every now and then. She has no dribbling issues.

 

Thank you,

 

Cassy

 

Hi Cassy,

I would start with the videos: "Developing Oral Sensory Motor Skills to Support Feeding in the Down Syndrome Population" and "A Three Part Treatment Plan for Oral Placement Therapy". These will help you get the clear understanding of how to do TalkTools Therapy with your child if there is not a trained therapist available. The Parent Kit would be a good place to start as far as tools go to use with your child. You will probably need more in the near future but I think that is a good place to start.  

Please let us know if you have any other questions.

Thanks,

Liz

 

Elizabeth Smithson, MSP, CCC-SLP is a Speech-Language Pathologist who has over 10 years of professional experience working with infants, children, adolescents and adults. She earned her Master of Speech Pathology at the University of South Carolina. Liz is also a Level 5 TalkTools® Trained Therapist. She has received specialized training in Oral Placement Therapy, Speech, Feeding, Apraxia, Sensory Processing Disorders, and PROMPT©. Liz works with clients with a wide range of disabilities including Cerebral Palsy, Down Syndrome, and Spinal Muscular Atrophy. She works through her own private practice Elizabeth Smithson Therapy, LLC in the home setting and in the TalkTools® office in Charleston, SC.

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Ask A Therapist: Oral motor therapy for an adult with Down syndrome

Posted by Deborah Grauzam on

Hello TalkTools,

I appreciate the opportunity to have my question regarding the potential benefit of securing oral motor therapy for an Down Syndrome adult being answered by a group of therapists who has exhibited such an understanding of the progression of the oral motor appearance of Down Syndrome children.

In regards to a Down Syndrome mature adult with a very protruding (and getting more protruding) tongue, is it possible to reduce the appearance of the size of his tongue and the degree of protrusion, even in an adult via oral motor therapy? Might such oral motor therapy prevent future swallowing issues from arising?

Conversely could a current failure to provide oral motor therapy to reduce the individual's tongue protrusion and/or enlarging size of tongue at rest, hasten/lead to future swallow problems?

Have you had personal experience of dealing with an Down Syndrome adult? And if so, what degree of improvement was obtained?

In addition to the potential swallow deficits that I am mostly concerned about, my heart breaks for the individual, as he is stared out everywhere when he is out in the community due to his very protruding tongue at rest.

I read with great interest the article by Sara Rosenfeld-Johnson on the development of oral-motor issues in the Down Syndrome population. I wish I would have seen this many years ago. In our case, it is way too late to prevent the Down Syndrome oral motor myths.

The question to you is this: Is it still possible to correct some of the oral motor manifestations seen by Down Syndrome individuals in an adult? In a mature adult? Can doing so prevent future deterioration? Have you personally attempted to do so? With what success level?

If you recommend oral motor therapy in such an instance which I cited: Are there any medical diagnoses that are legitimately available that would make the therapy coverable by Medicare/Medicaid?

Very truly yours,

Rachel

 

Hi Rachel,

I have received your questions and will do the best I can to answer them all.  I hope I am not missing anything. Yes, you can change the oral motor patterns and therefore tongue retraction in adults with Down Syndrome. I have worked with adults with Down Syndrome and have seen the patterns change and have had success with this program. The main thing that determines their success is the amount of practice that they are able to do between my sessions. It is recommended that they practice their home program a minimum of four times a week. The more work they do at home, the more progress I see. You will not decrease the size of the tongue but you will increase the strength and retraction and therefore change the pattern of the swallow.  This can decrease swallowing issues. I would think that the therapy by a Speech Language Pathologist should be covered. The parents I work with bill their own insurance so that would be determined based on the individual policies.

I hope this helps. Please let me know if you have other questions.

Thank you,

Liz Smithson

 

Hi Liz,

Thank you for the promptness and depth of your response. I was amazed. Thank you. I really appreciate this opportunity to hear your answers.

To make sure you haven't missed anything, I will expound. I am referring to a 54 year old. His tongue can protrude way below his chin at rest. I believe that this condition however truly only got worse recently. To my knowledge, he has not received therapy for this condition, certainly not within the past 15 years. He has a severe reverse swallow.

I would be willing to commit to practicing with him twice a week and can try to bring his direct care worker, who is exceptional on board. What are we talking about here: how many sessions? Over what period of time? What is the range of number of lessons?

1) Do you know any qualified therapists personally in the NYC area who have experience and a positive track record with the Down Syndrome adult population? Do any of them do evaluations/therapy? Do they permit family member or direct care taker to sit in during speech sessions so that they could learn how to work with this individual in house?

2) I have focused on the oral motor aspect because that is what everyone sees first and what I fear can cause him swallowing problems, medical issues, moving forward if it is not addressed now. I would love, however, to see him receiving some therapy to increase his expressive communication, perhaps via a prescribed device i.e. an iPad or some similar devices.

3) What speech/tongue conditions/diagnosis are reimbursable in your experience? Is a swallow test a mandatory prerequisite to making oral motor therapy that is covered by insurance? 

I am constantly told by those that advocate for him that success is not possible for him. Have you, or anyone you know, had success with adults of this age bracket? Longevity actually runs in our family. So we are hopefully talking about many years of benefit and prevention of further issues for the Down Syndrome individual.

To me, 54 is still young. But I am told such is not the case with Down Syndrome individuals as they have much shorter life spans. Have you found this to be true based on your experiences?

You are providing me with very pertinent information and strength on his behalf. I need to hear from someone experienced that his conditions can potentially improve with therapy. I can see no other choice but to try. The previous speech pathologist I informally spoke to (on a train) also shared with me that improvements can be secured, even in his population.

Thank you.

Respectfully yours, 

Rachel

 

Hi Rachel,

I am happy I can help.  I am going to try to answer everything without leaving anything out but if I do please let me know.

As far as how often to have the direct care worker work with him, I would recommend a minimum of two times a week in addition to your two, but anything she could do in addition would just increase the progress.

I do not personally know any therapist in NYC, but check the TalkTools "Find a Therapist" page. It lists Therapists Trained in Level 3 or higher levels in TalkTools Therapy. I would try to do an evaluation with one of them, if you can, and then you could do the follow up treatment. Typically, TalkTools Therapists encourage anyone else implementing the plan to be present for the evaluation, if possible, and often encourage you to video it if you can.

As far as reimbursement goes, that would depend on the individual plans and I would assume it would vary from state to state.  I do not currently do any insurance billing, so unfortunately am not able to answer that question.  

I have not worked with any clients with Down Syndrome that are that age. I have worked with adults but all were younger. I would recommend that you try and see if he is making progress. That is how I have always approached new patients in the past. We give it our best shot and see how they do.  

I hope this has helped. Please feel free to write me back if you need to. I wish you the best of luck and please keep me posted on how it is going.

Have a great day.

Thanks,

Liz Smithson

 

Elizabeth Smithson, MSP, CCC-SLP is a Speech-Language Pathologist who has over 10 years of professional experience working with infants, children, adolescents and adults. She earned her Master of Speech Pathology at the University of South Carolina. Liz is also a Level 5 TalkTools® Trained Therapist. She has received specialized training in Oral Placement Therapy, Speech, Feeding, Apraxia, Sensory Processing Disorders, and PROMPT©. Liz works with clients with a wide range of disabilities including Cerebral Palsy, Down Syndrome, and Spinal Muscular Atrophy.  She works through her own private practice Elizabeth Smithson Therapy, LLC in the home setting and in the TalkTools® office in Charleston, SC.

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Ask A Therapist: The right duration of vibration

Posted by Deborah Grauzam on

Hello!

 

I have a question about using vibration (as with the Z-Vibe or Vibrator & Toothettes). I understand that using vibration can be used to "wake up" the sensory system, and I believe I’ve heard that it can have a temporarily positive effect on low muscle tone. I’ve read that vibration should be used in short durations, but I was wondering if you had any guidelines for the maximum or minimum duration of vibration? I’m thinking especially in a case of low muscle tone as in children with Down syndrome.

 

Thank you very much!

 

Jennifer

 

Hi Jennifer,

My name is Lori Overland and I teach the two day sensory-motor feeding class for TalkTools. Your email was forwarded to me, and it is an excellent question.

You cannot separate out the sensory and motor systems. Sensory feedback always impacts movement and movement provides feedback. It is important to make sure you have a specific motor goal (i.e.: in the case of spoon feeding, perhaps the goal is lip closure). Vibration facilitates a contraction of the muscle, so it may be used in conjunction with a tool to facilitate upper lip mobility for spoon feeding. If you leave vibration on a muscle for too long, the muscle relaxes. If you are using my pre-feeding exercises, I recommend  4-5 repetitions (maybe a little more or less depending on my client's sensory system) of an exercise. If you think about your motor goal and map sensory on to motor, you will not have to be concerned about using too much vibration. Feel free to email me if you have a follow up question.

Lori

 

Lori Overland, MS, CCC-SLP is a speech and language pathologist with more than 35 years of professional experience. Lori specializes in dealing with the unique needs of infants, toddlers, pre-schoolers and school-aged children with oral sensory-motor, feeding and oral placement/speech disorders. She has received an award from the Connecticut Down Syndrome Association for her work within this population. Lori consults with children from all over the world, providing evaluations, re-evaluations, program plans and week-long therapy programs. Lori also provides consults to local school districts and Birth-to-Three organizations. Her goal in addressing feeding and speech challenges is to improve the quality of life for both the children she serves and their families. In addition to her private practice, Alphabet Soup, Lori is a member of the TalkTools® speakers bureau. Lori has lectured on sensory-motor feeding disorders across the United States and internationally. Her classes, "Feeding Therapy: A Sensory-Motor Approach" and "Developing Oral-Motor Feeding Skills in the Down Syndrome Population" are approved for ASHA and AOTA CEUs. Lori is the co-author of A Sensory Motor Approach to Feeding. She holds degrees from Horfstra University and Adelphi University and has her neurodevelopmental certification.

Meet her!

- Oct. 14-15, 2016 for the workshop Feeding Therapy: A Sensory-Motor Approach in Cape Giraudoux, MO

- Oct. 29-30, 2016 for the workshop Feeding Therapy: A Sensory-Motor Approach in Minneapolis, MN

More dates at: TalkTools.com/Workshops

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Ask A Therapist: Tongue Retraction

Posted by Deborah Grauzam on

Hi,

 

I'm beginning to work with a 7 year old boy with Down Syndrome and Apraxia. For the straws, he protrudes his tongue under the straw. He also does this with the Honey Bear. His Mom says she has a verbal cue of "fishy kiss" which will help him to round lips, and tongue will retract.

 

He also does the horns. He mastered #1 today :) ! We're also working with chewy tubes. Red is great, compressions become weaker with yellow. Bubbles are still needing cueing with the blue apraxia tube to get the lips rounded. He has a lot of force, but his lower lip protrudes and elevates and all of his air is directed up instead of out. It's getting better.

 

Is there something else I should be doing to get that tongue to the right position for straw drinking?

 

Thank you,

 

Meredith


Hi Meredith,

Great question regarding tongue retraction. The straw kit will work on tongue retraction at different levels of the tongue. It is important to have your patient work through the whole straw kit to achieve the retraction. It is also important to note that he does not have to demonstrate tongue retraction with straw drinking until he reaches straw #5. I do think using the "fishy kiss" verbal prompt before offering the straw is a great idea to set him up for the right movement pattern on the straw.   As far as the bubbles, try using the toothette with vibration as a sensory warm up right before the bubble activity. This should help him to achieve lip rounding more at mid-line without the upward movement he is demonstrating. Then I would transition immediately to using the green bubble tube that comes in the kit for blowing bubbles. Attempt blowing bubbles with this tube and see if that helps. Please let me know if you have any other questions. I hope this all helps. Thanks,

Elizabeth Smithson, MSP, CCC-SLP


 

Elizabeth Smithson, MSP, CCC-SLP is a Speech-Language Pathologist who has over 10 years of professional experience working with infants, children, adolescents and adults. She earned her Master of Speech Pathology at the University of South Carolina. Liz is also a Level 5 TalkTools® Trained Therapist. She has received specialized training in Oral Placement Therapy, Speech, Feeding, Apraxia, Sensory Processing Disorders, and PROMPT©. Liz works with clients with a wide range of disabilities including Cerebral Palsy, Down Syndrome, and Spinal Muscular Atrophy.  She works through her own private practice Elizabeth Smithson Therapy, LLC in the home setting and in the TalkTools office in Charleston, SC.

Read more →