When my son, Noah, was 2 years old, his speech therapist suspected he might have apraxia of speech. Noah had no intelligible language, almost no approximations and very poor oral motor skills. He did not have the motor coordination necessary to blow a bubble or produce any sound on a horn. He had weakened muscles throughout his mouth. His therapist gave us a horn (horn #1 from the TalkTools horn hierarchy) and told us to practice with Noah every day. She also referred us to TalkTools to purchase the rest of the horn hierarchy and the chewy tube set. We practiced horn #1 every single day for three months before Noah was able to produce his first sound. The amount of pride we felt at this tangible accomplishment was indescribable! After master horn #1, he quickly mastered the others in less than a year. He found great success with the horn hierarchy. Some were harder than others (specifically horn #7), but he worked so hard to master each of them. He loved the different noises the horns made- especially the train and airplane! Each horn taught him specific ways to move his mouth to produce noises and increased his oral motor coordination. We are still using chewy tubes- he still struggles with his left side.
After we graduated from the horn hierarchy, his speech therapist began using the bilabial shapes and tactile tubes to help teach him perfect his sounds. He is a very visual and tactile learner, so having these physical prompts really helped him find success. The bilabial shapes actually helped teach him his second and third words when he was 3 - "momma" and "more." Noah is now 4.5. He is still affected by his apraxia every day. But now, he has so many words. He has sentences! He is able to communicate his needs and wants. We are so grateful to TalkTools for creating these amazing products so kids like Noah can find their words. Thank you so much!
Noah's family is active in the Tampa Bay area and is busy every year fundraising for Apraxia Walks benefiting CASANA (Childhood Apraxia of Speech Association of North America).
3 years ago I was seeing a little boy named Kamdyn who had just turned 2 a couple months prior, through our state’s early intervention program. I was presented with some general background info such as scores, goals of the family, and his limited verbal productions. Also, he had 18 documented ear infections! All signs pointed to your typical late talking boy who had to endure ear infection after ear infection. When he turned 3 he began seeing his local school district for therapy services. I said my goodbyes to this sweet little boy and wished him and his family luck on their journey ahead.
Fast forward 14 months later. I had immersed myself into motor speech and feeding therapy and had opened my own private practice. In May of 2016 I got an e-mail from Kamdyn’s mom, Ashley, who told me he was recently diagnosed with severe Childhood Apraxia of Speech (CAS). Childhood Apraxia of Speech?! I know CAS is very difficult to diagnose before 3 years of age but I was dumbfounded and to be honest, disappointed in my clinical skills for not having any inclination. I worked with this little boy every week for over a year and I never once thought CAS was on the radar. After all, he had 18 ear infections!
There was no time for beating myself up, only time to get Kam into therapy and see what we can do. I had never worked with a kiddo with a sole diagnosis of severe CAS but I knew with all of the trainings I had taken in the last year I could bring something to the table.
Kamdyn came to his initial evaluation reluctantly. This kid had been through assessment after assessment and now he had to do more speech testing. My speech evaluation was different from others he had done though. I examined his mouth and assessed motor responses of his tongue, jaw, and lips. I found asymmetry in his jaw strength and stability, poor lip rounding, and poor lip closure for his /m/, /p/, and/b/ sounds. In addition, I found that he had a high palate, a moderate tongue tie, and a reverse swallow. While Kamdyn had no history of feeding difficulty or being a picky eater, he was chewing and manipulating the food in his mouth in a very unorganized way.
I explained to his mom that while this looks much different than traditional speech therapy it was essential to for him to have a good oral motor foundation. If we didn’t get his jaw in a good and stable position, he would inevitably have much more difficulty moving his tongue and lips when he speaks. It’s no different than a pyramid of cheerleaders. Without the stable base (the strong cheerleaders planted firmly on the ground), the cheerleader on the top of the pyramid won’t be able to do stunts. The cheerleader on the top is our tongue, the huge muscle that can demonstrate the finest motor movements that can be a difference between Kamdyn calling himself “Tam” instead of “Kam”.
Because of Kamdyn’s CAS and reverse swallow, he wasn’t using his muscles in the optimal way we want for speech. That is where the weakness came in. It was mild, but it was there. During speech he was in a constant state of retraction because he had to clench is jaw so much to provide stability in order for his tongue to have more movement.
I saw Kamdyn 2 x a week between last May and August, in addition to his traditional speech therapy. Our sessions consisted of approximately 30 minutes of oral placement exercises and 15 minutes of speech drills. We did not do 30 minutes of all OPT exercises, then 15 minutes of speech as that is not an effective way to generalize motor patterns. What I did was chain each OPT exercises with a functional speech sound/drill. For example, Kamdyn had a great amount of difficulty rounding his lips so we used the following sequence to target the /o/ “oooo” and /w/ speech sounds: Sensory motor warm up with a Z-Vibe involving cheek activation, fish lip pops, straw drinking, then mass practice of lip rounding sounds in CV or CVCV formation. The key is linking the OPT exercises from sensory, to feeding, and finally to speech.
Within just 2 months, his family noticed a marked improvement in not only his speech, but his confidence while speaking. The first video posted is of Kamdyn during his evaluation, the second video just 2 months after introducing an OPT based program. The difference in his ability to move his lips, cheeks, and jaw is astonishing!
It is an honor to be a part of Kamdyn’s therapy team and be able to see firsthand that OPT is not just for children with feeding difficulties. Kamdyn is living proof that speech is motor and if you pair sensory, feeding, and speech the sky is the limit!
~ Vanessa Anderson-Smith
Vanessa Anderson-Smith is a Speech-Language Pathologist born and raised in South Dakota. She received her Bachelor’s Degree at Augustana University and Master’s Degree from The University of South Dakota. In 2013 she began Anderson-Smith Speech Therapy, LLC. Her practice focuses on assessment and treatment of motor-based speech and feeding disorders among children and adults. Vanessa lives in Canton, South Dakota with her extremely supportive husband, Ryan.
In celebration of 30 years of successful therapy, we asked you to share your success stories with us at the last ASHA Convention and the response was amazing! Here is Diane Felton’s inspiring testimonial.
“I’m Diane Felton. I’m a speech therapist in Durham, North Carolina. I first met Sara through a patient who was referred to me because the local therapist who has been seeing him said she did not believe in oral motor therapy. So I was fortunate enough to pick him up, and when I was asked about taking him on, I decided to look into TalkTools, and everything that I saw in the program made sense to me. So I agreed to take him on and was fortunate enough to have Sara as a co-treator really throughout the whole process of treating this patient. He was a seventeen-year-old who has been in a car accident, suffered a traumatic brain injury and was non-verbal. He was able to type using a communication typewriter kind of thing that he called “typer,” but he had no speech other than one word which is “ma.” He had been in therapy for two and a half years at that point, which was what caused his mom to kind of go out and look for something else, something she felt like he wasn’t getting in the therapy. She was frustrated and he was frustrated.
“They started the program with Sara and worked at home for six months just on building his strength. He couldn’t blow out a candle, he had really severe verbal apraxia ... so a lot of the initial steps focused on getting his strength back for speech, then later he started working on the apraxia piece which is kind of where I came in and worked with Sara’s guidance on getting him some sounds. It has been seven years since I started seeing this patient and he is completely verbal. He gave up his communication device about two years ago and he is doing great. We are still working on prosody, that’s the main thing that is keeping him from being a pretty normal speaker, he is also a little bit slow still, but he is intelligible to me almost 100% of the time. Occasionally I need him to clarify, but even unfamiliar listeners understand him most of the time. It was a really great experience working with Sara and getting to know this program.
“I have had other patients who have had great success. I saw a three-year-old who was focused on communication devices because she had no speech and basically everyone had decided that she was not going to talk. She had a diagnosis of autism, she was also a twenty-four week premie, one of triplets, and she had no speech. I used the TalkTools program with her and she had a very hard time getting the oral motor planning down, but TalkTools really helped her. It was about a month for her to get the word “up” and her mom asked if every word was going to take that long, but within three months she had a pretty good vocabulary, and a year later she was pretty much completely verbal and only was really working on speeding up her rate of speech which is still slow but she has done great.
“I have had lots of other patients who have done exceedingly well. Sara coming into my life was one of the greatest things that ever happened to me. I have loved the TalkTools program. I have been just so thrilled to be able to help people who come sort of as their last ditch effort and just kind of not sure if they should continue to even try, and TalkTools program has worked for them. So thank you Sara.” ~ Diane Felton, MA, CCC-SLP
We are incredibly appreciative of those who shared their stories, let us know if you have a story to tell.