Tagged "Success Stories"


Success Story | Lily and Vanessa

Posted by Deborah Grauzam on

Lily, 3 years 4 months old, Unilateral Cleft Lip and Palate

image2When I saw that my former supervisor from my job during college and graduate school was adopting another special needs child from China, I was glued to their journey (the family had adopted a boy with cleft lip/palate from China previously). I watched from my computer screen as the Shields family adopted another child with a cleft lip and palate. That little girl was Lily (pictured on the left). And oh my, I have learned so much from her!

She had many medical complexities, surgeries, and hospital stays in her first year home. I continued to follow her story and literally thought: “I need to find a way to work with this girl because I know I can help!” How was I going to help? Using my OPT skill set of course! I knew in my heart that using Oral Placement Therapy and a motor-based speech and feeding program would get her where we wanted her speech the most efficiently.

Finally, the time came for me to see Lily for therapy. She was 2 years 6 months when we started. She was communicating wants and needs by pointing, grunting, and whining. She had a g-tube but was able to eat orally, just not enough. I looked at her repertoire of speech sounds and we started at the beginning with /p/, /b/, /m/. She wasn’t getting adequate lip closure needed for consonant-vowel productions (such as “moo, bye, pa”). The first thing I did was create a sensory warm-up plan for her to bring increased awareness to her muscles in her mouth. I used a toothette and various exercises from Lori Overland’s “Feeding Therapy: A Sensory-Motor Approach” course, as well as exercises Monica Purdy taught in “A Three-Part Treatment Plan for Oral Placement Therapy” course that I took.

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Next we started the Straw Hierarchy to help with lip closure, lip rounding and protrusion. I explained to her family that while this does not look like “traditional” speech therapy, it will help her to get the motor plan of lip closure so we can generalize it to speech. In addition, we began the Bite Tube Hierarchy due to jaw weakness and asymmetry, as well as the Horn Hierarchy to build up her abdominal grading.

Lily’s family was beyond committed to the program I designed and the whole family got involved. Every week I tweaked her program plan as she moved up through the hierarchies. Each session we started with her sensory-motor warm up, followed by her OPT and feeding exercises, a small snack, and ended with mass production of speech sounds.

Her endurance during eating still needs improvement but it has come quite far since the start of therapy. Due to her improving health and no recent hospitalizations, she is off of her tube feeding! The little girl that was struggling with one syllable word productions is now speaking in 3-4 word sentences consistently. Currently Lily is on Straw #5, Horn #6, Bite Block #3 (step one), and 4 pennies on a tongue depressor. Next, I plan on introducing the Button Pull Program and working through the hierarchies since it has been so successful for her already.

What I love about the TalkTools program is how diverse it is. I can adapt techniques to work with a variety of populations whether it is Cleft Lip and Palate, developmental delay, Apraxia of Speech, and countless other diagnoses. I am so thankful to have OPT in my “speech therapy tool box”!

Vanessa~ Vanessa Anderson-Smith

Vanessa Anderson-Smith is a Speech-Language Pathologist born and raised in South Dakota. She received her Bachelor’s Degree at Augustana University and Master’s Degree from The University of South Dakota. In 2013 she began Anderson-Smith Speech Therapy, LLC. Her practice focuses on assessment and treatment of motor-based speech and feeding disorders among children and adults. Vanessa lives in Canton, South Dakota with her extremely supportive husband, Ryan.

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Success Story | Diane

Posted by Deborah Grauzam on

In celebration of 30 years of successful therapy, we asked you to share your success stories with us at the last ASHA Convention and the response was amazing! Here is Diane Felton’s inspiring testimonial.

“I’m Diane Felton. I’m a speech therapist in Durham, North Carolina. I first met Sara through a patient who was referred to me because the local therapist who has been seeing him said she did not believe in oral motor therapy. So I was fortunate enough to pick him up, and when I was asked about taking him on, I decided to look into TalkTools, and everything that I saw in the program made sense to me. So I agreed to take him on and was fortunate enough to have Sara as a co-treator really throughout the whole process of treating this patient. He was a seventeen-year-old who has been in a car accident, suffered a traumatic brain injury and was non-verbal. He was able to type using a communication typewriter kind of thing that he called “typer,” but he had no speech other than one word which is “ma.” He had been in therapy for two and a half years at that point, which was what caused his mom to kind of go out and look for something else, something she felt like he wasn’t getting in the therapy. She was frustrated and he was frustrated.

“They started the program with Sara and worked at home for six months just on building his strength. He couldn’t blow out a candle, he had really severe verbal apraxia ... so a lot of the initial steps focused on getting his strength back for speech, then later he started working on the apraxia piece which is kind of where I came in and worked with Sara’s guidance on getting him some sounds. It has been seven years since I started seeing this patient and he is completely verbal. He gave up his communication device about two years ago and he is doing great. We are still working on prosody, that’s the main thing that is keeping him from being a pretty normal speaker, he is also a little bit slow still, but he is intelligible to me almost 100% of the time. Occasionally I need him to clarify, but even unfamiliar listeners understand him most of the time. It was a really great experience working with Sara and getting to know this program.

“I have had other patients who have had great success. I saw a three-year-old who was focused on communication devices because she had no speech and basically everyone had decided that she was not going to talk. She had a diagnosis of autism, she was also a twenty-four week premie, one of triplets, and she had no speech. I used the TalkTools program with her and she had a very hard time getting the oral motor planning down, but TalkTools really helped her. It was about a month for her to get the word “up” and her mom asked if every word was going to take that long, but within three months she had a pretty good vocabulary, and a year later she was pretty much completely verbal and only was really working on speeding up her rate of speech which is still slow but she has done great.

“I have had lots of other patients who have done exceedingly well. Sara coming into my life was one of the greatest things that ever happened to me. I have loved the TalkTools program. I have been just so thrilled to be able to help people who come sort of as their last ditch effort and just kind of not sure if they should continue to even try, and TalkTools program has worked for them. So thank you Sara.” ~ Diane Felton, MA, CCC-SLP

We are incredibly appreciative of those who shared their stories, let us know if you have a story to tell.
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Grace Kauk's Oral Placement Therapy work in Bulgaria

Posted by Deborah Grauzam on

Grace Kauk writes about her Oral Placement Therapy work in Bulgaria.

"I met Steve and Tanja Pankratz over email in February of 2015. Three weeks later, I was making plans to move to Bulgaria.

The Pankratz' are missionaries in Bulgaria through SEND International. Their 8-year-old son, Jaden, has Down Syndrome. When he was born, God began to show them how great the needs were among the Bulgarian special needs community, and over the years, special needs has become the focus of their work here. Along with some like-minded people, they created a new foundation, called Nova Stupke (meaning "New Steps") to be a platform for serving special needs individuals and their families. The work is in its infancy, but so far includes family summer camps, a home visitation program, a school assistance program, and a special needs day center. I came to Bulgaria primarily to be Jaden's teacher, but also to help with the larger ministry in any way I can. I arrived in November of 2015, and if God is willing, I will stay until summer of 2017.

As I prepared to travel, SMILE on Down syndrome, our local parent network, offered to help outfit me with supplies. As I thought about what tools I most wanted to bring with me for Jaden, OPT supplies were at the top of my list. My sister has Down syndrome, and while there are many therapies that helped her over years, the value of the interventions created by Sara Rosenfeld-Johnson simply cannot be overstated. I wanted that value for Jaden. I knew I could make my own flashcards and math manipulatives - but I didn't want to skimp on oral placement tools. I prayed. SMILE contacted TalkTools on my behalf. And we asked for a donation.

TalkTools helped me figure out what tools we would need for Jaden and sent an abundance of supplies not only for him, but enough for us to make OPT a significant part of what Nova Stupke offers families. One of the happiest moments of my life was opening that box!

TalkTools | Grace Kauk in Bulgaria

So now I have been here six months. I work with Jaden about 4 hours each day, and we are best friends. As part of my work with him, I am using the Jaw Grading Bite Blocks, the Horn and Straw Hierarchies, and the Bubble Blowing Hierarchy. Jaden is making progress in all of those. He has gone from being unable to blow a bubble to blowing them a distance of 3 feet. Recently, we saw a huge increase in Jaden's expressive language, especially his sentence length. OPT is not the only reason for that, but I know that the bubbles were an important piece for him.

In addition to my work with Jaden, I've had the privilege of introducing the tools to the Nova Stupke team-members and explaining when they are indicated and how they are used. Besides Jaden, there are currently two other children who are receiving some OPT. I have met dozens more who would benefit.

At my request, TalkTools included A Three-Part Treatment Plan for Oral Placement Therapy video-on-demand and some other training materials. I am especially grateful for that. When you are a parent or a layperson (like myself) trying to help a child without access to professional support, it means the world to have the chance to educate yourself. I personally refer to those materials over and over, and have encouraged other workers to do the same.

It is my hope that as we grow our program this summer and fall, we will be able to serve many more children with this therapy. I am so grateful to TalkTools for resourcing us."

Before Grace worked with Jaden, he had tongue placement issues, particularly when drinking and when saying /s/ and /z/. He is also hyperactive and has a quite short attention span. She is videotaping Jaden's siblings modeling the exercises correctly and with good behavior to help him see what is expected of him. Discrete video modeling is very effective for Jaden and he regularly gets four 15 minutes sessions of it daily.

Jaden's mom, Tanja, says: "Thank you for the privilege of being recipients of the TalkTools oral motor resources. We are extremely grateful for your generosity, not only to our son but to the children we are working with through our "New Steps" Foundation. As Grace mentioned, we are in the beginning stages but pray that we can help make a difference in these children's lives. The need is great and we have focused this last year on training our staff and experimenting with a variety of different services, including school assistance, Portage Early Intervention Program, and just recently were able to open a modular day center for special needs children. We are trying to assess where the greatest needs are and where to focus our efforts, which we will define this summer after evaluating these last 8 months. Grace graciously did a training seminar on TalkTools Therapy for our staff. It is now available for them to use and Grace has offered to consult them along the way. As our staff gets confident and comfortable in using these tools, they will be extremely helpful in their work with special needs children. Thank you from the bottom of our hearts."

TalkTools | Grace Kauk in Bulgaria   TalkTools | Grace Kauk in Bulgaria

Grace Kauk's trip is entirely funded by donations. The goal of her trip is to empower therapists and parents in Bulgaria to help children with special needs, and Jaden in particular. Because Bulgaria doesn't have good resources for special needs children, Jaden's various developmental needs are evaluated through video appointments with neurodevelopmentalists in the US. Grace is the "hands on the ground" responsible for implementing his therapy assignments. Grace says about Bulgaria: "Children with special needs are typically not admitted to schools. Families truly have little to no help figuring out their children's developmental needs. Special needs families who chose to raise rather than institutionalize their children have an uphill battle. If schools do not accept their special needs children, the family is in danger of impoverishment because of the child's needs. In order for them to be financially solvent, we anticipate setting up a sponsorship program for scholarships for the kids."

Nove Stupke also recently implemented a home visitation program to best answer Bulgaria families' needs. Portage trainers from Russia and England have trained Nova Stupke's staff. Portage is a highly family centered organization, in line with Bulgaria families' needs. Grace says: "We help the parents set developmental goals that will make life easier in their families. Sometimes it is surprising what the parents' priority is, and it may not be what the therapist would have chosen, but it is what matters to them. Then we guide them with what they can do to work toward those goals, and the family is accountable to do those activities."

Grace can be reached via comments below.

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Cerebral Palsy treated with Oral Placement Therapy in Norway

Posted by Deborah Grauzam on

LineVildeIn a recent article published in the Norwegian publication Cerebral Palsy Magazine,  TalkTools® Instructor Line Avers, MS, SLP is featured along with one of her long date client diagnosed with Cerebral Palsy. The main focus of the article is TalkTools Therapy and the huge gains that this little girl has made. TalkTools® Instructor Renee Roy Hill, MS, CCC-SLP also evaluated her way back, and Line Avers has followed that therapy plan. Her name is Vilde, and her picture makes the front cover of the magazine!

Line Avers has been Vilde's therapist since she was two and a half years old. Vidle's parents heard of Line Avers in conversations with other parents in a Cerebral Palsy Association. They recommend to seek speech therapy services early, as many children with Cerebral Palsy have speech and feeding issues. "Vilde still faces challenges related to eating and speaking, but the problems have been reduced after several years of regular oral-motor therapy," says Linn, Vilde's mom.

"Vilde therapyWe started the work on strengthening the functional movements by strengthening the muscles in the mouth that we use when we eat and speak. We took small steps, and it was important to find a balance between pushing slightly while respecting boundaries," says Avers. "When Vilde became accustomed to the therapy, I introduced new exercises. Jaw strength was the focus. A stronger jaw provides more support, and more support means more words. This is how Oral Placement Therapy works."


"After a few months we could already see improvement. Vilde was better at chew, was willing to try several types of food and produced more different sounds," says Linn, Vilde's mom.

TalkTools Therapy involves a range of tools for exercising your jaw, tongue and sensory system. Vilde has used bean bags (small pillows with different textures), straws, horns, bite tubes and vibrator with toothettes.

Daily monitoring and training is important. Vilde's parents have been present from the beginning during training to learn the method and exercises. Every day after school, the family spends 15-20 minutes going through the latest exercises. "It may sound like a lot, but it really takes very little time. It has become part of our daily routine. It is easy, and the program is very affordable," says Linn.

bean bagsIn addition to working directly with children, staff in schools and kindergartens, and parents, Line Avers's center also organizes live workshops. Parents, grandparents and professionals who want to become familiar with TalkTools Therapy can participate. The goal is that after two days of training, you should be able to initiate the procedure.

Vilde's family hopes that her story can inform other families about an important service that they may have no knowledge of and maybe even inspire them to start training.

Line Kristiansen Avers, MS, SLP is a Speech-Language Pathologist who has over 12 years of experience specializing in topics within Apraxia, Alternative and Augmentative Communication (AAC), and Oral Placement Therapy. Line teaches classes in Apraxia and AAC at the University of Oslo, lectures at numerous seminars within Norway, and is a member of the TalkTools® speakers bureau. Line heads a private oral-motor, speech and language clinic in Norway, BARNAS språksenter. She has an M.S. from Penn State University and was a Fulbright Scholar.

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Success Story | Beth and Heather

Posted by Deborah Grauzam on

In celebration of 30 years of successful therapy, we asked you to share your success stories with us at the last ASHA Convention and the response was amazing! Here are Beth Marafiote and Heather Peterson's inspiring testimonials.

“My name is Beth Marafiote and I live in Parker, Colorado. I discovered TalkTools and Sara Rosenfeld-Johnson many many years ago after going to many different other people’s workshops on how to help oral motor. They helped a little bit but not much. I discovered her. She revolutionized the way I do therapy. I feel like her products have made me the best therapist. Well, that’s a little exaggeration, but so much better. I am forever ever grateful because I view these products as the miracle of speech therapy.” Beth Marafiote, MA, CCC-SLP

“Hi, my name is Heather. TalkTools has completely changed my life. I think we all start in the same place, where we are gathering information. When I was newer into my career, I found Sara Rosenfeld-Johnson’s first course and I took a video course (the “Level 1” course) and it was really after that that I decided: “Wow, look at all this information that I just learned! I have never heard this before, this totally makes sense to me. I think I’m going to try it!” And so I had a child - actually, it was not a child, it was a teenager - walk in and he had Dandy-Walker Syndrome, he wore a bandana, and he drooled constantly. His mother came in and said: “You know, I would really like to work on this drooling. I want his mouth to close, I want his tongue to be in his mouth, and I really want him to try to use his mouth for speech.” I just remember, I think the weekend before I have been to that course and I just thought: “Ok, I’m going to try this. I’m going to use the Bite Tubes, and I’m going to just order that,” because it was the one thing that I grasped: the jaw was so important. So we used those on him and that mom was amazing. We used those on him for about six months and we were able to close his jaw and his lips, and there was no more saliva. We took off that bandana. For so many of us, we know that perception is so important. Not only had we changed his oral function, but we changed the perception of everybody looking at him and that is really important. That is just one awesome example of what TalkTools has done. If you think about a fourteen-year-old, he was not spontaneously developing, that was something that the mom really did. So that’s a really true testimony to TalkTools. Since then, it has opened up my eyes and I started using it and I really have changed my practice. I predominantly now work with children with Down Syndrome and I watch it every day. Parents comment every day that this is changing the lives and the faces and the structures and the articulation and feeding development of the children. I have really my career I have to thank Sara Rosenfeld-Johnson for creating and I am keeping on with the oral motor movement even when it wasn’t such a hot topic, because clinically - man - it is just so incredible. So thank you TalkTools, thank you Sara, and thank you to everybody in the oral motor community who has come before.” Heather Peterson, MS, CCC-SLP

We are incredibly appreciative of those who shared their stories, let us know if you have a story to tell.

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